Registry for the Advancement of Deep Brain Stimulation Therapy in Parkinson’s Disease

The Registry for the Advancement of Deep Brain Stimulation Therapy in Parkinson’s Disease (RAD-PD) is a quality improvement effort focused on deep brain stimulation therapy and outcomes for Parkinson’s disease patients. The registry partners are the Parkinson Study Group, Neuropoint Alliance, Neurotargeting and the financial sponsor is the Michael J. Fox Foundation. The NPA originally served as a subcontractor to provide registry management; however, as of January 2020, the NPA now serves as the registry and technical platform manager. The RAD-PD patient registry launched in the fall of 2018 and the first registry patient was enrolled in March 2019. The registry has 10 participating centers, has enrolled approximately 45 patients, and seeks to activate 10 additional centers. If all sites meet the minimum patient enrollment goal, at least 474 patient will be enrolled in the first two years of the registry. The NPA and RAD-PD Steering Committee are working to develop a process to capture diagnostic images for analysis in REDCap. The NPA hopes to add the image data collection process to the registry in 2021.